“Life is pleasant; Death is peaceful. It’s the transition that is troublesome”- Isaac Asimov
Palliative care is a field of medicine that focuses on an individual’s and family’s quality of life as they suffer from a chronic illness. It involves ensuring the individual is knowledgeable about their disease process, has all of the resources they need to succeed, and can ultimately end with Hospice care.
Palliative care candidates are those who suffer from chronic illness such as heart failure, COPD, multiple sclerosis, cancer, etc. Hospice is a subset of the umbrella of palliative care, but not all palliative services involve hospice.
Palliative care enables individuals to have the best quality of life for their illness. With the knowledge they need to succeed, individuals with palliative care often live longer, go to the hospital less, and have a higher life satisfaction.
The team involves MDs, RNs, social workers, case managers, and more. They all work together to provide an extra layer of support and listening ears. The team may assist with arranging resources, pain control relating to the illness, advanced care planning, end of life wishes, among many others things.
Today, I got the opportunity to witness a beautiful conversation between a palliative care nurse and a wife of her very ill husband at the bedside in the ICU. The RN opened the conversation to the wife and the wife had unrealistic beliefs regarding her husband’s medical condition. The RN was able to answer questions regarding his diagnosis/prognosis, provide options, pray, and truly listen to the wife’s concerns. Here are a few questions/concerns the wife had that were answered:
- What will happen if we turn off the machines?
- Will the doctor say, ‘I told you so’?
- Will he gasp for air?
- How will I live without him?
- I never lost hope in God. This just isn’t in his plan and that is so hard.
- How do I tell my 3.5 year old granddaughter that papa is not coming home?
- How do I call and start this conversation with my family?
- He isn’t getting any better, but my heart hurts so much.
- I know he wouldn’t want to be on life support, but how do I know when to stop it?
The Palliative Care team gives families and individuals the opportunity to discuss their concerns in a safe environment and the support when they may not even realize they need it. It is a heartbreaking field to be in, but it is truly a calling and the opportunity to witness this interaction was such a blessing.
Do you have any patients or family members that may benefit from palliative care?
Until next shift,
Shania